Hysterectomy for endometriosis?
Monday, September 21st, 2009Two months ago had my right ovary removed due to a 15cm mass. They found that I had advanced endometriosis, but at the time, only removed the one ovary. Now after two months, I am having pain everyday on the right side, and now pain on the left side. I had an ultrasound today, that revealed a thick endometrium, but no cysts or masses on the left side. I started taking Seasonique a couple weeks after the surgery to control the endometriosis, but it doesn’t seem to be working since I am having so much pain. My Dr. seems to think it is either adhesions or more endo. I am thinking endo since I am having pain on the left side, and they did no surgery on the left side. The options I have been given are Lupron (which I will not consider due to the side effects), and hysterectomy. I do not plan to have children, but wondering if these are my only options? I really do not want to take hormones, but I cannot endure the pain any longer, and simply cannot take narcotics everyday. I’m 36.
The Dr. did not do a hysterectomy at the time because I told her I wanted to avoid HRT at all costs (my mom had a terrible time). At the time, the left ovary was ok. The surgery was done because of the mass, the endo was discovered when the mass was removed. I’m baffled why I have more pain now then I did with a 15cm mass, and just two months after surgery. I considered waiting it out to see if it would get better on Seasonique, but the pain is getting worse, not better.
LISTEN TO ME. Please. I am only adamant about this because I’m 39 years old and just had a hysterectomy myself. I, too, have endometriosis. I just had my uterus, one ovary AND even an appendix removed because mine was so bad (but I never wanted kids, so it’s cool).
I can’t give you a medical opinion because each case is so unique. However, get more than one opinion (I had 4 and Aetna covered every one of them), do your research and the thing I was going to tell you is read up on MSM. It’s a supplement. The long name is methylsulfonylmethane. As I was home on disability and doing research, I found amazing things about it. I get it at Whole Foods in NJ, but you can find it at any vitamin or health foods store. You can’t overdose on it as you literally "pee it out" in 12 hours, it’s just a form of sulfur. I began reading up on it as I was vain and didn’t want to have a terrible scar. It was an ingredient in a cleanser that my dermatologist recommended and it cleared my skin so well, I wanted to know more.
What I found is that it aids in pain relief immensely, helps patients heal quicker after surgery, and get this – side effects are healthier hair and nails. I got out the hospital March 25th and until this day, I haven’t so much as taken a Tylenol for pain. NOTHING. I hadn’t even noticed until a few weeks ago (since I was on disability and sitting in front of my pc most of the day) that even my beginning signs of carpal tunnel have completely ceased.
I take 3000 mg a day. MSM was used for people with tennis elbow, knee problems, etc. I have found the pain relief phenomenal. My boyfriend who practices martial arts and is a few years older than me started taking it and says he has noticed an improvement in his performance without pain.
Please, do your research and look into it. I suffered with pain of endometrios right up until the day I closed my eyes on the surgeon’s table and today my hair is ultra healthy, I don’t even bother to wrap my nails anymore (extra cash in my pockets) and after major surgery haven’t even had an aspirin. We’re about the same age. It’s not too late to learn.
I don’t want to bog you down with links, but check out these to start you off. You still need to see a doctor to find out what’s going on inside your body, but you can possibly relieve much of the pain you’re experiencing.
I won’t leave my email address here, but you can go to my profile and if you want to contact me, feel free. I know what you mean about the pain.
Good luck, Sweetie!
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